Category Archives: Treatments

Amelia Rivera Receives Kidney Transplant

Amelia Rivera is home after receiving a kidney transplant. According to USA Today the surgery was done at Children’s Hospital of Philadelphia, where her family previously complained she had previously been denied being considered for a transplant because of her intellectual disability due to Wolf-Hirschorn syndrome. The surgery took place July 3, 2013. Continue reading


NNZ-2566: Could this prove helpful?

NNZ-2566 is a drug that intends to reduce brain inflammation. Much of its development has been funded by the military since it is hoped that this drug could reduce the effects of brain trauma. Now the Neuren Corporation is planning clinical trials with children with Rett syndrome and is currently developing the protocol for the trials. Continue reading