Category Archives: Projects

In the News from Washington State

Families band together to unlock mysteries of rare genetic disorder

by Cathy Zimmerman in Washington’s The Daily News is about Jay Hegstad-Enneberg and the 401 Project. It includes a link to the project. Here is a brief quote:

In January, those 200 families banded together to raise $236,000, the amount necessary to fund research directed at unlocking the mysteries of MECP2 at Baylor College of Medicine in Houston.

The group calls itself “The 401 Project,” because $401 is the amount each family must raise to fund the research.

Click here for the whole story…


Project 401

project 401 logo25 January 2012 Families of individuals with MECP2 Duplication Syndrome have formed Project 401. The goal of the project is to raise $80,000 by April 1, 2012 to make a down payment on a research project that represents an important first step toward treatment for MECP2 Duplication Syndrome. The name project 401 alludes both to the date 4-01 (April First) and the amount ($401) that each of 200 family members is hoping to raise or contribute in the next two months.  Continue reading


Pam Albert’s Plea to Tim Tebow

Here is Pam Albert’s Plea to Tim Tebow. She is trying to get this video to be viewed by as many people as possible to help get Tim Tebow on board to support her efforts to raise awareness of MECP2 Duplication Syndrome and raise funds for research. Continue reading