6 February 2012 This is a question that is frequently asked, but it is not simple to answer. There seems to be a lot of misunderstanding, and many believe that there have only been about 100 confirmed cases diagnosed so far. In fact there are a lot more than that, and no one has a precise count. In earlier years, 2005 to 2007 or 2008. There were only a few labs that were testing for MECP2 Duplication and so it might have been possible to simply add up totals from these labs to get a number. Since then, however, the number of labs doing this testing has grown rapidly and the number of tests performed has sky rocketed. There can be no doubt that the total number of cases diagnosed worldwide is now more than 1,000 and may be as high as several thousand. This number is increasing every day. Continue reading
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