About this blog
This blog is intended to share information of interest to families affected by MeCP2 Duplication Syndrome and others who are concerned about those with this condition. It is important to remember that each individual who has MeCP2 duplication is unique. What works well for one, may not work for others. The information shared on this site should not be considered medical advice. Therefore, it is essential to consult with your family member’s physician before applying medical interventions discussed on this blog.
This blog is designed as a partner site to www.mecp2duplication.com. If you have a child or family member, who has MeCP2, please visit that site and consider adding your family to those already listed on the site. That website also includes a discussion forum for communication among interested parties.
About the Editor
Dick Sobsey is a Professor of Educational Psychology and Director of the John Dossetor Health Ethics Centre at the University of Alberta in Edmonton Canada. He has worked with children and adults since 1968. He is the coauthor of Educating Children with Multiple Disabilities and is Assocate Director of the JP Das Developmental Disabilities Centre. He is also the father of an 19-year-old son with MeCP2 Duplication Syndrome. More about David is included on www.mecp2duplication.com.