This post is intended only for Members for the MECP2 Duplication Syndrome Facebook Family Talk Group. Group membership is limited to family members of individuals with MECP2 Duplication Syndrome
Our MECP2 Duplication Syndrome Facebook Family Talk Group Photo Directory currently includes photos and some information about 167 individuals. It has been about a year since we invited photos, so I am renewing the call for photos at this time.
To include your child (who has this syndrome) in this album, please e-mail a photo to firstname.lastname@example.org
Please include the child’s name, date of birth, and the country where you live. If you would like, you are also welcome to include the names of family members, city and state, date of diagnosis, and other relevant information.
If the pictured is deceased, you may choose to indicate when they passed away.
You can use the same e-mail address address to send a newer photo or update previous information, but only one photo of each individual will be included in the directory so newer entries will replace older ones. NOTE: if you are updating a photo, you will probably need to include all the associated information as the previous information normally is lost when the old photo is replaced.
To view the directory album, you must be signed into facebook and be a member of the MECP2 Duplication Syndrome Family Talk Group. The directory album can be found at here.