Unity, Strength, Hope Conference


This is a reminder about the upcoming conference on MECP2 related disorders in June. This event is really two conferences in one: (1) A family conference for those whose family members are affected by Rett syndrome, MECP2 duplication syndrome, FOXG1 syndrome, CDKL5 disorder, or other MECP2 related syndromes., and (2) a concurrent professional and research symposium on the same disorders. The conference will take place at the Eaglewood Resort in Illinois, June 22-24, 2016.



One response to “Unity, Strength, Hope Conference

  1. Mick Dee Prose

    Last evening, I attended a fund raiser for MECP2 in the name of a little boy in downtown Cranbourne, Victoria Australia. My wife and I along with approximately a 100+ people of all age groups attended. The most important thing I gathered from a wonderful evening of fun, laughter and yes enjoyment, although not yet over the line the MECP Family worldwide Is on the positive side of reaching a cure and the video of DR. Huda Y. Zoghbi talking about the success with the trials with mice was more than encouraging for a cure for these boys who have entered the world in a different space to the regular mainstream.
    With reference to our last evenings event i say “excellent work Amy and Sally, and keep smiling Asher” and remember:-
    Winners are patient ,
    They know a goal is only as worthy
    as the effort that’s required to achieve it.
    Winners are people like you.
    They make this world a better place to be.
    Go get them Amy, Sally and Asher.!!!!!!!!!

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