Special thanks on behalf of families of individuals with MECP2 Duplication Syndrome to my colleagues Fred Orelove and Donna Gilles who have decided to assign 100% of the royalties of our forthcoming book, Educating Children with Severe and Multiple Disabilities to support research efforts to find new and better treatments. Royalties will be paid to the MECP2 Duplication Syndrome Fund at the Rett Syndrome Research Trust.
Fred and Donna have been leaders in the field of developmental disabilities for decades. Donna currently serves as Executive Director of the Partnership for People with Disabilities at Virginia Commonwealth University, a University Center for Excellence in Developmental Disabilities. Fred served in the same position until his retirement a few years ago.
Educating Children with Severe and Multiple Disabilities will be the 5th edition of a text that Fred and I first published in 1987. The publisher is Brookes Publishing, in Baltimore, MD. Working with Fred and Donna on this book, I know how much time and effort went into this project, and I am overwhelmed by their willingness to direct the fruits of their labor to help those affected by MECP2 Duplication Syndrome.