I am sorry that I have been neglecting this blog. I’ve just been trying to balance too many things. This excellent video from Andrew Solomon is definitely something that parents of children with severe disabilities need to access.,,, and it inspired me to try to catch up. See previous post on his book, Far From the Tree, for more on the book this is based upon.
About this BlogThis blog is intended for families, researchers, and professionals interested in better lives for children and adults with MECP2 Duplication Syndrome. Pam Albert's MECP2 Duplication Syndrome Website provides a great deal of useful information for families and profiles of many of the current children and adults diagnosed with this condition. Facebook users who are members of families if individuals with MECP2 Duplication syndrome may wish to join the Facebook MECP2 Duplication Syndrome Family Talk Group for discussions of family matters.
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2010 Winner Medical billing’s Top Genetics BlogAn expert panel reviewed 400 genetics blogs and selected the top 40. Happy to say this was selected as one of those 40.