If you are a parent or primary caregiver of a child or adult with MECP2 Duplication Syndrome who is at least 3 years old, please take a few minutes to fill out this small survey on regression in individuals with MECP2 Duplication Syndrome. Please respond whether or not you have observed regression. Thank you.
Data collection for this survey closed on 30 December 2013. Results will be posted early in 2014.