MECP2 Duplication Syndrome Conference Poll

RETT Syndrome Conference

26 -29 June 2014

Washington, DC, USA

Many families of individuals with MECP2 Duplication Syndrome have received a poll from Pam Albert regarding the possibility of having a MECP2 Duplication Syndrome Conference in conjunction with the Rett Syndrome Conference in June of 2014. If you did not receive this survey and would consider attending such a conference, please fill out the following survey. We need your input to determine if we can make this work.

Please respond to this poll below only if you have not already responded to the poll by e-mail.

We are excited to tell you about the upcoming Rett/ MECP2 Duplication family conference. The conference is set to be June 26-28th, 2014 for the family meeting. The conference will be held in the Washington, D.C. area; a venue has yet to be confirmed. This will be held in conjunction with the International Rett Syndrome Foundation’s annual meeting and the registration fee is anticipated to be $200 (inclusive of meals).

We are sending out this announcement so that you all can mark your calendars, and we are also trying to get a preliminary head-count of those who wish to attend.

If any parent is interested in serving on a planning committee, please contact either Pam Albert or Sarika Peters as soon as possible.

Thank you all for your time and help, and your continued dedication. If you have any questions or would like to volunteer, please do not hesitate to contact us. 

Comments are welcome!

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