MECP2 Duplication Syndrome Families on Facebook


MECP2FTFBFamilies of children or adults with MECP2 Duplication Syndrome are invited to join one (or more) of the Facebook groups connecting families.  The MECP2 Duplication Syndrome Family Talk Group links more than 300 family members from around the world. Topics of discussion include: information sharing, mutual support, news on research and treatment, practical tips, and lots more.

The UK MECP2 Duplication Syndrome Support Group links 1904 family members, primarily in the United Kingdom and Europe.
Duplication MecP2 France links 72 Francophone family members in France and other countries.
To join these groups, family members must join Facebook (if they are not already members). Then go to the group page and request membership.

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