Families Raise Awareness and Cash for Research

CAUTION2Families of children with MECP2 Duplication Syndrome and their families have banded together to raise public and professional awareness of the condition, support families,  and to raise money for  critical research.

Here are a few examples of recent news coverage on their activities.

Flemington tricky tray raises $11,190 for MECP2 Duplication Syndrome

Londonderry Township boy inspires ‘ultramarathon’ athlete, who raises money for van

Blake McMillan Trust receive £350 from youngsters

Families have already raised enough to fund one major research project and are making progress toward funding a second. Contributions can be made to the MECP2 Duplication Syndrome Fund at the Rett Syndrome Research Trust.


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