23 November 2012 The Australian Broadcasting Corporation MECP2 aired a great segment on MECP 2 Duplication Syndrome featuring the Holland Family and the Wright family. It is available on-line at this link. The segment has sparked a lot of interest in the condition. Concurrently with this broadcast the new Van Wright Foundation website on MECP2 Duplication Syndrome was also launched.
About this BlogThis blog is intended for families, researchers, and professionals interested in better lives for children and adults with MECP2 Duplication Syndrome. Pam Albert's MECP2 Duplication Syndrome Website provides a great deal of useful information for families and profiles of many of the current children and adults diagnosed with this condition. Facebook users who are members of families if individuals with MECP2 Duplication syndrome may wish to join the Facebook MECP2 Duplication Syndrome Family Talk Group for discussions of family matters.
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2010 Winner Medical billing’s Top Genetics BlogAn expert panel reviewed 400 genetics blogs and selected the top 40. Happy to say this was selected as one of those 40.