The 2013 MECP2 Duplication Syndrome Family Conference is currently being planned. This survey is intended for families to provide input on the conference program. It is a short survey with just 10 questions, please take a few minutes to provide some input.Feel free to answer as many questions as you like and ignore some questions if you feel they are not applicable or you have no opinion about them.
We will publish the results of this survey here in a few weeks. I have tried to incorporate some of the ideas that people posted to the Facebook MECP2 Duplication Syndrome Family Talk Group. We may have more followup surveys as more ideas emerge. The conference planning group will take these ideas into consideration but will need to consider a variety of other factors. For example, breakout sessions and exhibits have been suggested, but these may be difficult to arrange at a small conference.
Feel free to use the comments section on this page to provide additional input.