This poll was for parents or primary caregivers of individuals with MECP2 Duplication Syndrome. Responses were collected from March 27 through April 5, 2012. The poll is now closed but results can be viewed, here.
6 April 2012 Summary. Responses were provided for 102 individuals with MECP2 duplication syndrome. The top bar indicates the distribution of seizures among all respondents. The remaining for groups indicate the distribution within four age categories. Overall, 46% of individuals were seizure free, 17% had experienced seizures but seizures were considered to be well controlled and, 37% had seizures that were considered to be poorly controlled.
In summary, seizures become more prevalent and more difficult to control with age. Among those who live into adulthood, the true prevalence of seizures appears to approach 100%. This is not a scientific study and is based upon a small sample, but the findings are consistent with other reports.
This is not intended as scientific poll.