Good News! Congratulations to everyone who participated in the 401 Project! They reached their first goal, raising $80,000 to get research started, and they reached it well ahead of their April 1, 2012 target date They will soon be announcing a new target to further research efforts to better understand and treat MECP2 Duplication Syndrome.
About this BlogThis blog is intended for families, researchers, and professionals interested in better lives for children and adults with MECP2 Duplication Syndrome. Pam Albert's MECP2 Duplication Syndrome Website provides a great deal of useful information for families and profiles of many of the current children and adults diagnosed with this condition. Facebook users who are members of families if individuals with MECP2 Duplication syndrome may wish to join the Facebook MECP2 Duplication Syndrome Family Talk Group for discussions of family matters.
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2010 Winner Medical billing’s Top Genetics BlogAn expert panel reviewed 400 genetics blogs and selected the top 40. Happy to say this was selected as one of those 40.