There is a brand new Facebook group for families of children or adults with MECP Syndrome in the United Kingdom. The UK MECP2 Duplication Syndrome Support Group was started to link the growing number of affected families in the UK.
Duplication MecP2 France is a French Language group on Facebook for affected families that has been running for some time now.
Another new site on Facebook is The 401 Project page. This page is set up specifically for discussions of THE 401 PROJECT, an effort by families of children and adults to raise funds to start research on MECP2 Duplication Syndrome. The project has its own site at www.401project.com/