UK MECP2 Duplication Syndrome Support Group

There is a brand new Facebook group for families of children or adults with MECP Syndrome in the United Kingdom. The UK MECP2 Duplication Syndrome Support Group was started to link the growing number of affected families in the UK.

Duplication MecP2 France is a French Language group on Facebook for affected families that has been running for some time now.

Another new site on Facebook is The 401 Project page. This page is set up specifically for discussions of  THE 401 PROJECT, an effort by families of children and adults to raise funds to start research on MECP2 Duplication Syndrome. The project has its own site at www.401project.com/

 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s