25 January 2012 Families of individuals with MECP2 Duplication Syndrome have formed Project 401. The goal of the project is to raise $80,000 by April 1, 2012 to make a down payment on a research project that represents an important first step toward treatment for MECP2 Duplication Syndrome. The name project 401 alludes both to the date 4-01 (April First) and the amount ($401) that each of 200 family members is hoping to raise or contribute in the next two months. Donations are being collected through the Rett Syndrome Research Trust, and the presence of Paypal donation buttons on the Project 401 site make it easy for anyone to make a contribution of any size. If you want to help support this effort, this is a great way to do it.
About this BlogThis blog is intended for families, researchers, and professionals interested in better lives for children and adults with MECP2 Duplication Syndrome. Pam Albert's MECP2 Duplication Syndrome Website provides a great deal of useful information for families and profiles of many of the current children and adults diagnosed with this condition. Facebook users who are members of families if individuals with MECP2 Duplication syndrome may wish to join the Facebook MECP2 Duplication Syndrome Family Talk Group for discussions of family matters.
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