Monthly Archives: June 2010

Dr. Alan Percy Audio

Thanks to the International Rett Syndrome Foundation, Jennifer Endres, and Dr. Alan Percy, Dr. Percy provided a June 21st talk followed by questions and answers for parents of boys with MECP2 Disorders, most frequently MECP2 Duplication Syndrome. The talk along with the question and answer session was recorded and is available for listening on the web. Continue reading


MECP2 Duplication Australia Video

Families from around the world are making plans to come to Houston for the May 2011 MECP2 Duplication Syndrome Conference for vital information, family fellowship, and hope. The costs for families to come from great distances will be substantial and beyond the means of families. Please share this video with others.

The story of the Holland family and their journey with MeCP2 Duplication Syndrome.
Donate today to assist them to get to the USA in 2011 for the first ever conference world-wide into MeCP2 Duplication in Houston, Texas in May 2011.  You can also support the ongoing care of Asher and research into a cure.
For more information, please contact Michelle or Allison at: