24 May 2010 – A new discussion group has been started on Facebook for family members of individuals with MECP2 Duplication Syndrome. The development of the group followed some recent discussions by about 20 family members on Facebook. In order to take part in the discussions and have access to the entire site, it is necessary to join the group. Group membership will be limited to family members (this is necessary to limit junkmail posts to the group) but ALL close family members are welcome. If you are a Facebook user , please consider joining the group. For more information or to join the site, click on this link to Facebook MECP2 Duplication Syndrome Family Talk. For more details on how to join and how to use the new facebook site, see the FamilyTalk page on this site.
About this BlogThis blog is intended for families, researchers, and professionals interested in better lives for children and adults with MECP2 Duplication Syndrome. Pam Albert's MECP2 Duplication Syndrome Website provides a great deal of useful information for families and profiles of many of the current children and adults diagnosed with this condition. Facebook users who are members of families if individuals with MECP2 Duplication syndrome may wish to join the Facebook MECP2 Duplication Syndrome Family Talk Group for discussions of family matters.
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2010 Winner Medical billing’s Top Genetics BlogAn expert panel reviewed 400 genetics blogs and selected the top 40. Happy to say this was selected as one of those 40.