24 May 2010 – A new discussion group has been started on Facebook for family members of individuals with MECP2 Duplication Syndrome. The development of the group followed some recent discussions by about 20 family members on Facebook. In order to take part in the discussions and have access to the entire site, it is necessary to join the group. Group membership will be limited to family members (this is necessary to limit junkmail posts to the group) but ALL close family members are welcome. If you are a Facebook user , please consider joining the group. For more information or to join the site, click on this link to Facebook MECP2 Duplication Syndrome Family Talk. For more details on how to join and how to use the new facebook site, see the FamilyTalk page on this site.
Daily Archives: May 24, 2010