The Daily News in Longview, Washington, published an article on Jay Hegstad and his family today. The story, “Rare condition poses daily challenge for Longview boy, mom” does a good job of describing some of the challenges facing families of children with MECP2 duplication syndrome, and especially the additional challenges of single parenting. This article includes a couple of nice pictures of Jay and his mom (NOTE: You have to click on the image tab, near the top of the story to see the second picture). News stories like this one are helping to educate the public about MECP2 duplication To view the article, click here.
Search this Blog Site
Visit the 401 Project or Donate.. Click image below.
MECP2 Duplication Syndrome Fund
MECP2 Family Talk Facebook Group
FOLLOW THIS BLOGYou can follow this blog on Twitter, RSS Feeds, or Networked Blogs using the buttons below:
Follow on Twitter